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ALL MY FAMILY ARE DYING By Jobs Selasie
In Christmas of 2000, I telephoned my brother Danny
in Africa to wish him a happy holiday and much joy for
the coming year and new century. After reciprocating
my holiday cheer, he was surprised to learn that his
letter, which was sent the previous week, had still
not reached me. I hoped it would arrive soon and proceeded
to discuss with him my efforts to bring him to England.
We had both left home upon the outbreak of war - to
Europe, he to Kenya - and it was always decided that
he would follow me after a visa and other documentation
for travel became available to him through my efforts.
After a further exchange of friendly words, my friend
continued to express his concerns about his letter,
and broke off admonishing me, "Just call when you
get my letter
then we will talk!" Well, his
obsession really had me going and was a clear indication
that some surprise was waiting to reveal itself - maybe
a new job, as he was unemployed, or some other piece
of good news. I was indeed full of hope and optimism,
it being the holiday season after all, but that was
soon to change. I received his letter 24 hours later,
and it read as follows:
Dear brother,
How are you? I hope you are doing okay and are adjusted
to the European life. But I am praying everyday that
God gives me strength to survive this difficult time!
What I am about to say, brother, is very difficult;
it is hard to tell someone you love - to tell you that
I was diagnosed with AIDS about three weeks ago. I had
suspected this for a long time, but I refused to get
tested until I became very weak because I was very scared.
And when I phoned home to tell my wife about it, she
informed me that she, too, had been diagnosed with HIV,
as well as our eight-month old girl, who contracted
the virus during my wife's pregnancy. She had hidden
this from me to keep me from worrying.
Because I had waited so long for testing, they advised
me that I must begin ARV treatments immediately. My
wife and my child also need immediate ARV before we
die altogether within few weeks. But the problem is
that the drug is extremely expensive, and even if you
have the money, it is still a rare commodity in the
drugstores; you can't find it anywhere. I don't want
to be a further burden on you, in addition to the money
you send me every month, but if you can somehow get
the medication to my little girl, at least she can stick
around long enough to know her father and uncle. Don't
worry about me. You're prayers and love are enough.
I could not believe what I was reading. My body became
chilled. I began sobbing. The tears were rolling down
my cheeks as the world was celebrating a new millennium.
Even in 1999 alone, uncles Debebe, Abay and Zehai, Aunties
Huruit and Kuku, my cousins Shiferaw, Taye, Teclue,
Gideon and Haile. My childhood friends Abel and Ermias
have died from AIDS. I am very aware that nine other
members of my family have been on AIDS death row already,
but my brother? AIDS news was different to me, "a
final blow". I tried calling Danny, but was unsuccessful
in reaching him after hours of redialling. So after
a sleepless night, and not without more tears, I went
to work. This workday was impossible to avoid as I was
supporting my sister, her five children and unemployed
husband. Not to mention Danny and myself. I really could
not afford to miss a single day. I performed janitorial
services at a local hospital. Though I am well educated,
an asylum seeker with a temporary work permit is given
few options. It was only with great difficulty, then,
that I made it through the day, painfully attempting
a smile here and there and a few words with my co-workers
as on previous days. When I made it home, I decided
to try reaching Nairobi Kenya again, and this time I
was successful. Danny made every effort to assure me
that he was fine; but that his sole concern was his
wife and child for whose welfare he was really at a
loss to provide. I promised that I would do my best.
After that brief and troubling call, I forced myself
to make another. I called Danny's wife in Addis Ababa
Ethiopia. I had been the best man in their wedding in
1998, and when she heard it was me she wept unremittingly
for three or four minutes before permitting me to comfort
her. To my horror, she managed to utter the woeful news
that her daughter was buried that afternoon, having
died the night before, after two weeks in the confines
of a hospital ward from which she was finally released
to die at home. There was nothing more they could do.
And so, after several more awkward attempts to comfort
this poor woman, she remitted to me the unenviable job
of informing her husband, Danny, of his little girl's
untimely death, as this had not yet been disclosed to
him.
Fortunately, no minutes remained on my phone card,
so that evening I was mercifully spared the dreadful
task that lay before me. So I just lay in bed, and began
to surmise on the inequities of this life and the unfair
dispensation of our earthly tenure. We are born in war
and we grow up in war. We are born in poverty, and grow
up in poverty. Must we endure pestilence too? But always
used to having love, hope and family.
I was soon to learn that it was not only my brother
Danny who has AIDS and-my-sister in law has only HIV,
but my younger sister who lives in Ethiopia is also
HIV positive. For the present, however, my three unfortunate
loved ones provided enough misery, and more to spare.
And so, another sleepless night lay before me. My mind
was in turmoil and afforded me little rest. AIDS would
eventually rob me blind - my family, loved ones, friends
or all together my community. Remembering the old hopes
and dreams, I thought of a future now impossible: Danny's
arrival in Europe, the retrieval of his little family,
and the building of a new life apart from poverty -
decades of war. I thought of life and peace, and my
desire to take them both for granted, like so many others
do! But AIDS? Even wars and famine come to a conclusion;
second chances, starting over, etc. I miss them more
than any time. I want to have wings to fly over there
and be there with them. But how can I if I have neither
enough money nor passport; still I am asylum seeker
myself. I become very depressed and sad, even some times
feeling suicidal. I felt these are the only options
I have in front of me. But I say no to death. I have
to be there for those I love the most; to those the
most disadvantaged in this unfair world, my people who
I belong.
But when will this end? I knew my life was changing,
although not like I planned, but how to challenge, how
to fight back to keep the hope, love, family, and community
together to survive to win over death?
I want to get out from this shocking moment and depression.
Save my family from death before they die. My sister-in-law
is just one month away from death. She lost all her
muscles and is starting to lose her conciseness a little
bit now. Danny too is loosing weight almost daily. Supplying
medication is very urgent. Supplying them medication
with my income is unthinkable. The medication alone
costs £30,000 a year for three of them without
hospital and other living costs. This is three times
my own income. But I am determined; the people I love
most in my life I cannot see them dying from this treatable
disease because I am poor. I couldn't help them to survive
this death by my own income only, but I can ask people
for help. I am lucky I am living in a very rich and
humanitarian country that is giving me the chance to
live in peace and work to send money back home like
other millions of African immigrants who live and work
in peace in the UK.
My first priority is how to keep my brother and sisters
alive. My brother and sister-in-law are in immediate
need of treatment as they are in full-blown AIDS. My
sister still has some time to develop to full-blown
AIDS. Not to mention other relatives and friends who
are dying from AIDS. I start to search organizations
that can help me get medication. I'm sending letters
to charities like Oxfam, Christian Aid, CARE, etc. Some
of them they say they couldn't help with medication;
some of them didn't reply at all. I start to make phone
calls, emails and visit AIDS clinics coming face-to-face
with doctors and AIDS victims asking them for help and
telling them how I am desperate to save my family from
this very treatable disease. But time was running out,
especially for my sister-in-law. Her health is getting
worse and soon she will follow her angel to heaven.
She died from this treatable disease like her daughter
because she couldn't afford medication. I am too poor
to help her to get this life-saving medication. That
was the lowest point in my life. I felt helpless, a
loser and sad. She was generous, down to earth, and
very gorgeous and was only 25 years old.
After one month of searching for help, I got very good
news for the first time in months from one English man
named Mr. John who lived with HIV for 15 years. He happily
gave me a six-month supply of my brother's medication
and £300 cash for hospital and other expenses.
Thanks to this gentle man's kindness my brother started
to recover, and with very short time he got back all
his muscles that he lost in the height of his disease.
Within two months he started working again. This generous
man has given life to my brother. Bless him. That was
the highest point of my life. Tomorrow will be better
than today. I constantly say to myself "keep the
hope"
I want to remember them every second of my life. I
want show my solidarity, my love, my commitment to them.
To reflect them in my everyday life. To protest everyday.
I decided not to eat any animal product or flesh and
salt, just to eat vegetables with no salt. Not to smoke
cigarettes. NOT to drink anything except tap water--no
alcohol, no tea, no coffee, no juice or soft drinks.
And to run 25 miles a week until they get the treatment
to save their lives. That's my promise. I realised ans
well that I have to be emotional, spiritual, extremely
strong and physically healthy just to survive this difficult
time. And I have to save every penny because I know
it makes a lot of difference back home.
Even though I grew up in a very traditional Orthodox
Christian family, I've never been to church or prayed
to god since my teen rebellion, but now I've started
to pray three times a day: in the morning when I wake
up, at noon before lunch and in the evening before dinner.
My prayer brings back my spirituality. I've started
to get spiritually and emotionally strong. I quit my
40-a-day smoking habit, I used to drink alcohol a couple
of times a week and love beer and whiskey, but now I've
stopped altogether drinking alcohol. Us Orthodox Christian's
never eat pork, but I couldn't eat any food without
meat in it. But now I've stopped eating any animal product
and have become a vegan. I've stopped drinking caffeine
of any kind, and am drinking only water. I started the
long-life of ascetics. The last time I did exercise
was when I was in secondary school playing football
15 years ago. My laziness was changed through daily
exercise and running almost every day being an athlete.
I gained my spirituality, focus, discipline, health
and fitness, and started making a difference in my life
and the journey to keep my family alive and save them
from death.
To keep the only thing I have in life, which is to keep
my family alive forever, to broaden my support to all
my relatives, community and my fellow Africans to fight
AIDS in an organized way in a clear vision I founded
a charity called African AIDS Action in 2001. After
I registered it with charity commission, I got my first
generous donation from Elton John's foundation to promote
my campaign. I set up a website www.africanaidsaction.org
and started raising funds online; donations started
to come. I was touched by the generosity of the British
public. They are very kind human beings - the most generous
people I've seen in my life. The people I was supplying
medication has gone up from one to four. My brother,
sister and two other relatives. Even though I was very
successful in keeping my family alive, I wasn't satisfied
with my achievement. Because other than my relatives
and friends, members of my community and another 7500
Africans are dying from AIDS; 1500 newborn babies are
infected every day because the can't have access to
medication. I want to do the something about this. First,
why is this drug very expensive?
I hired a visiting Chinese scientist from Cambridge
University. He concluded his research study in six months.
He studies show I can make this life saving drug affordable,
accessible and available to anyone who needs it. What
is the role of these big pharmaceutical companies on
making this drug out of reach of Africans? Why is the
pharmaceutical industry non existent or failed in Africa?
How have Brazil and Thailand succeeded in making this
life-saving drug universally accessible for all and
for free. Despite all the global publicity and attention,
why has the international community failed to curb this
AIDS killing field in Africa?
The answer in the research report is by establishing
one continental wide not-for-profit manufacturing facility
capable of producing and disturbing in big volume, it
is very possible to make this life saving drug affordable,
available and accessible to anyone who needs them to
save his or her life in short time. From those 25 million
HIV positive Africans, there are about 7.5 million of
the middle class who can afford the drugs if the price
would go down without waiting for hand outs. Those very
poor can have access easily by the support of their
relatives like myself. The money I was spending for
my brother on only his medication could cover six more
relatives who died because I couldn't help them. I believe
a sustainable solution is possible.
I was encouraged by the Brazilian Project, however,
which managed to reduce the mortality rate of AIDS victims
by 85 percent, and this happened largely through the
efforts of a few dedicated activists, and single handily
by Brazilian government despite American president Bill
Clinton's big pressure to stop it to keep his country's
pharmaceutical industry interest. Now this life saving
drug is universally accessible in Brazil. No one dies
because of no accessibility to medication. The same
success history is now seen in Thailand, the second
only third-world country to have universal access to
AIDS drugs. Learning from the Brazil and Thailand experience,
it is not that difficult to make these drugs universally
accessible in Africa. What is needed is will, a good
plan and money. There are now surplus scientists and
engineers in our world. Technology is not a problem.
It is everywhere: Asia, Europe, America and Brazil.
Patent issue is easy to solve with those patent holders.
They have less than two percent market share in Africa.
Even corruption and crime are main problems in Africa.
There are few parts of Africa that have the lowest corruption
rate in the world and almost with no existence of crime.
It is good to implement this project into those areas.
It is also about transferring technology and creating
employment in Africa.
To implement this project I need $550 million, which
is about two percent of the USA and UK AIDS budget for
Africa that they allocated in 2005. To get funding and
political support I sent the research report or business
plan with a covering letter to Mr. Hilary Benn, secretary
of international development. I waited over six months
for a response to my proposal. It was later ignored
by Tony Blair, department of International development.
I then began lobbying my local member of parliament.
A letter was soon dispatched from his office to Hillary
Bern. One month later, a response arrived at the desk
of my local MP, claiming that much progress was already
being achieved by the United Nations. It continued to
describe how, by the end of 2005, three million Africans
will have access to treatment. The letter actually stated
that there is nothing to worry about regarding AIDS
in Africa. Tony Blaire's Africa commission will come
with a solution that solves the problem, like what to
do with their PR practice. He's telling me to keep quiet.
Needless to say, I was convinced that I was being ignored,
and that I was required to knock much louder to be heard.
I broadened my campaign by sending letters to opposition
party leaders Michael Howard and Charles Kennedy; to
parliamentarian groups on AIDS activism; to the entire
cabinet of the labour government; and to some influential
members of the upper house. Conservative party leaders
Michael Howard and Charles Kennedy responded quickly,
and promised to address the DIFD and continue supporting
my work in the future. It was very encouraging for me
and my campaign. Some members of parliament, however,
were entirely uninterested, including Dian Abbot, one
of the few black members of parliament. Even the chairmen
of the parliamentary group on AIDS whose self-styled
position was that of the "voice of the voiceless",
advised me with no uncertain terms to discontinue wasting
my time burdening. But despite these very few negative
responses, there were indeed some encouraging efforts
by other members of Parliament and cabinet members like
Paul Boating, and a support and sympathy letter from
Chancellor Gordon Brown.
After a lot of letters, pressure and tabled emotion
in parliament by liberal democrat MP Tom Brake and Hillary
Benn started to give attention to my proposal and I
been asked to give a presentation to the DIFD. On the
proposed day of the presentation, me and my comparing
mate, three DIFD officials and one private consultant
who they hired (in 2003, DIFD spent £780 million
on consultant fees alone, one fourth of the budget of
the department or three times of the money needed to
implement this life-saving project) to study my proposal
in the meeting. What I learned quickly of the officials
is that they are not interested in my presentation;
they were only there to tell Mps that they had a meeting
with me and to tell me what they decided with their
consultant. That is to find help from the World Bank,
UNAIDS, etc. The reason they gave me UK government works
thought this multinational agencies. The truth is that
the UK government policy works through country programmes.
This means that the aid programs for different African
countries are different program and depends on British
government interest in that country. My project is African
continent wide. The only way to make this drug very
affordable and sustainable is to have a big market to
produce it in big volumes. But the British government
has different policies on AIDS for each African nation
depending on its interest, not on humanity. So they
don't have an African continent wide aid policy or political
will to save lives like what Tony Blair preaches. For
any pharmaceutical company to survive, it need more
than £100 billion GDP economy per year. That's
why all national African pharmaceutical businesses have
failed. Africa needs AIDS drugs cost less than £
0.10 a day and one continental targeted not-for-profit
pharmaceutical company who produces in mass and distributes
and monitors throughout Africa, who doesn't seek profit
from these extreme poor people. This African AIDS action
proposal is the only way to make this life-saving drug
universally accessible and sustainable in Africa. Not
by dumping billions of tax payers money on corrupt African
government or the powerful western charities who don't
have a good plan nor political will to save human lives.
That's why they are always failing despite billions
of investment and endless self publicity.
The conservative party shadow secretary for international
development, MP Alan Duncan, has demanded parliament
debate about an African AIDS action proposal to solve
the AIDS crisis in Africa through conservative MP Hugo
Swire. The house speaker accepted it and fixed a date
for debate on October 2, 2005 in west minister hall.
On the debate date, International secretary Hillary
Benn, Alan Duncan MP, Tom Brake MP, Lib-Dem shadow secretary
for international development Hugo Swire MP, and other
MPs, Representatives of the pharmaceutical companies,
etc. chaired by the deputy house speaker of the parliament
were present. The debate started by Hugo Swire MP saying
"We must ask ourselves why. After 10 years of campaigns
and efforts to focus world attention on the issue, only
50.000 of the 4.1 million Africans suffering from full-blown
AIDS are currently receiving treatment. That figure
is so minimal that it cannot but call into question
the entire premise on which the international communities
effort have hitherto been based. Worldwide effort to
generate more publicity for the AIDS pandemic have sadly
failed to translate into increased drug availability
for those who need it most - those on the African continent.
I want to focus on the best way of tackling the problem
to ensure that victims of this terrible disease are
provided with the best possible treatment in the 21st
century". He highlighted the failed policy and
campaigning. This was followed by Alan Duncan MP's quote:
"At present, ARVs can be produced at a far lower
cost than ever before and there is massive need. But
the extreme demand is not accompanied by the necessary
purchasing power among the needy. A key policy option
would be to bridge that gap by combining the most economic
production of ARVs with a dramatic extension of the
ability of patients to pay for them and encourage government
to embrace our proposal". Lib-dem Tom Brake MP
says "Africa AIDS Action. I shall call it AAA from
now on to avoid repeating myself. Aims to produce large
quantities of essential anti-AIDS drugs and to price
them at an affordable level so that Africans, assisted
by the international community, can have universally
free access to HIV treatment". He pleaded with
Hillary Benn MP to support the proposal and make a real
difference. The secretary of state for international
development responded: "On the African AIDS Action
proposal, I congratulate the organization on its enthusiasm
and ambition" and then continues his excuse as
to why he will not support our proposal, like what he
did the entire year.
I felt like I achieved something because my proposal
was debated in the world's oldest and famous parliament
almost for two hours. But at the same time, I felt my
campaign reached a dead end for the moment in this parliament.
The political parties, Mps, lords and other politicians
who supported me said they can't do more than this to
change government policy.
As a grassroots organization, we back those ordinary
people who have helped me save my brother, sister, and
other relatives' lives, my HIV positive sister to have
a healthy baby, to run an AIDS awareness campaign, to
lobby government parliament that was financed and supported
by those ordinary people who just who want to make a
difference. Not like the government who give to improve
their image or protect their interest. It is possible
by asking 13 million people from around the world to
give only £25 we can make this life-saving drug
to make it universally accessible to millions of dying
fellow Africans. Already, a lot of our donations and
moral support comes from USA, Canada, Australia, Europe,
and sometimes Asia and Latin America.
From the middle of 2005, I started to establish African
AIDS Action in America and Canada as a non-profit organization.
At the end of 2006, my organization granted license
from the USA government as a not-for-profit organization.
I developed a business plan for my organization to raise
money in 26 countries around the globe. And me and my
organization are ready to start the "Save my family's
lives" campaign.
Still I am losing my family and friends. I lost my little
baby niece, my sister-in-law and 42 other family and
friends; 47 of my relatives and friends are still facing
death from AIDS because they can't afford medication,
as well as other millions of fellow Africans to this
treatable disease. Still everyday thousands of our newborn
babies are infected with HIV from their mother in pregnancy
because their mother has no access to medication. But
I am not a complete loser; I saved my brother; my sister
was not only saved here, she had an HIV free healthy
baby thanks to the generosity of people who support
me. Their donations were able me to supply this life-saving
drug to 13 AIDS sufferers. These drugs make miracles.
Now more than any time I have a clear detailed vision
to extend the chance that my brother, sister and other
sufferers to other millions of fellow Africans. I am
healthy; I lost six stone and confident. I will save
the remainder of my family's lives. I am full of hope
and optimistic.
I know I still have a long way to go to achieve my goals.
But I fine. I will keep my promise always. I did keep
it for seven years. I lived as an ascetics, vegan, teetotal,
as an athlete and committed campaigner to make this
life-saving drugs universally accessible. To be very
spiritual, purposeful, focused, simple, always remembering
and coping well with the daily pain. I have this big
smile on my face because we will win over AIDS. I have
big hope and love in me despite what happened to me
and my family. I am fighting back and very determined
not to sit down and see my young brothers and sisters
die.
From the 6 billion world population, if only 12.5 million
people donate £25 each this life-saving AIDS drug
will be universally accessible to any one who needs
to save his or here life, or to protect their unborn
child from HIV infection during pregnancy. . Or by considering
donors as investors who are investing for change. By
selling 1.3 million shares for £100 each for those
results, transparency and accountability conscious investors/donors
raise the necessary funds and set up a professionally
run non-profit pharmaceutical manufacturing and distributing
facility in Africa. This will produce AIDS and other
life saving drugs in big volume to make them affordable,
available and universally accessible to all dying Africans.
In return the facility will be owned by shareholders
who seek dividend as form of result for their investment.
Shareholders are entitled to vote at the annual meeting
and have a say how the pharmaceutical company shall
run and distribute its product. They will hold accountable
the organization for result by active participation
as shareholders. And I will have the chance keep my
beloved family alive forever in my life time. Could
you be part of this life-saving project, hope, vision
and change? Please be part of it. Make a donation and
feel good by being one of these 12.5 million people
who will change and become history makers.
Send your cheque to P.O.BOX 303 Rainham Essex RM13
8QL or log on http://www.africanaidsaction.org/buy-share.html
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